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题名/责任者:

Patient-gnerated health data : dimensions, challenges, and open questions / Mayara Costa Figueiredo, Yunan Chen.

出版发行项:

Hanover, MA : Now Publishers, 2020.

ISBN:

9781680836684

ISBN:

1680836684

ISBN:

9781680836691

ISBN:

1680836692

载体形态项:

136 pages ; 24 cm.

丛编说明:

Foundations and trends in human-computer interaction, 1551-3963 ; volume 13, no. 3

个人责任者:

Costa Figueiredo, Mayara, author.

附加个人名称:

Chen, Yunan, author.

论题主题:

Medical informatics.

论题主题:

Medicine-Electronic information resources.

论题主题:

Self-care, Health.

中图法分类号:

R-058

书目附注:

Includes bibliographic references.

摘要附注:

In this review, we present an overview of patient-generated health data (PGHD) research, focusing on important aspects that inform and define studies in the area. We start by exploring a fundamental question: what is patient-generated health data? We list the main terms and definitions identified from previous research and generate a set of seven key dimensions for understanding PGHD: (1) the health focus of the study, (2) the type of data, (3) who proposes the use of PGHD, (4) whose data are collected, (5) who are the intended users, (6) how PGHD is collected and used, and (7) the duration of PGHD use. We describe these dimensions and discuss their importance to research PGHD. We then present a discussion of the impact of PGHD and related practices in people's lives and the debates concerning the consequences, both positive and negative, that may arise.

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